Volunteering
Volunteer Opportunities
Variant Champions
A variant champion is a ConnectMyVariant member who organizes communication among members who share their variant. Champions help in a big way—on a small scale. Variant Champions correspond with members individually and set up ways for the group to build relationships, usually through social media or virtual meetings. They can also coordinate family history efforts, sometimes with the help of professional genealogists at the BYU Center for Family History and Genealogy.
Family Outreach Navigators
ConnectMyVariant has many dedicated and compassionate volunteers who work with our members as Family Outreach Navigators. Family Outreach Navigators get to know members - their journey with genetic testing, and their successes and challenges with family outreach. After at least 6 hours of training on how to support members, Family Outreach Navigators work with members and variant groups to explore solutions and resources to address various types of barriers with family outreach, suggesting additional directions to consider that could expand the reach of family communication. A Family Outreach Navigator may work with members or variant groups for few months or several years, setting up video calls every 2 to 3 months or more frequently as desired.
Committee Members
- Patient and Family Member Advisory Board - patients and family members directly improve and developing. ConnectMyVariant. Guides outreach, recruitment, and enrollment efforts.
- Medical and Science Advisory Board - promote family outreach among colleagues and in professional circles, develop research and grant policies, review ConnnectMyVariant materials for medical and scientific accuracy.
- Executive Advisory Board - have distinguished themselves in their fields and have a deep passion for ending hereditary disease. Provide organizational, financial, and strategic support for ConnectMyVariant.
Translators
Translators communicate ConnectMyVariant content in different languages. ConnectMyVariant helps families connect around the globe. Members with language skills can increase the reach of disease prevention efforts.