For Participants
Turn Genetic Knowledge into Action
Research is at the heart of everything we do. ConnectMyVariant focuses on connecting individuals through shared genetic variants and family trees. This provides a vital foundation for research aimed at clarifying genetic risk, refining care recommendations, and improving familial communication to ensure families can access proactive care.
CURRENT PROJECTS:
Research Contact Preferences During Sign-Up
When signing up with ConnectMyVariant, participants are invited to indicate whether they would like to be contacted regarding upcoming research opportunities.
Regardless of your response at initial registration, you can update or confirm your choice at any time:
- Yes – Contact me for Research Opportunities
- No – Do not contact me for Research Opportunities
Frequently Asked Questions About Research Participation
- Selecting No ensures that you will not receive outreach regarding research studies. This decision will not affect your standard access to variant connections, program updates, or future non-research projects through ConnectMyVariant.
- If a response was not selected OR you need to update your response from your initial sign up - please email signup@connectmyvariant.org
- No. Attending an informational meeting is purely educational and does not commit you to participating in any research study. It is simply an opportunity to learn more about our ongoing work so you can make an informed decision on your own terms.
- No. All research opportunities are completely voluntary. Choosing whether or not to attend informational meetings will have zero impact on your ability to receive connections, general updates, or participate in future core projects through ConnectMyVariant.
- Remote. Most research through ConnectMyVariant is conducted remotely either directly through ConnectMyVariant or with other collaborators on a study.
✉️ Participant Contact: research@connectmyvariant.org